Events and Barriers are opportunities to address potential failure points with targeted Therapy Support for patients and clinicians.


KEY EVENTS

Open All Events
Diagnosis
  • Patient presents with unaccounted symptoms after misdiagnosis
  • Recommendation of treatment
Treatment Initiation
  • Reimbursement
  • Initial use/administration
Ongoing Treatment
  • Onset of side effects (possible)
  • Onset of efficacy (possible)
  • Returning for treatment/ monitoring visits
  • Ongoing data/evidence collection for payers

FOCUS AREA

Rare Diseases

A patient support program developed and deployed by HCS had a 16:1 ROI.

Events and Barriers are opportunities to address potential failure points with targeted Therapy Support for patients and clinicians.


KEY EVENTS

Open All Events
Diagnosis
  • Patient presents with unaccounted symptoms after misdiagnosis
  • Recommendation of treatment
Treatment Initiation
  • Reimbursement
  • Initial use/administration
Ongoing Treatment
  • Onset of side effects (possible)
  • Onset of efficacy (possible)
  • Returning for treatment/ monitoring visits
  • Ongoing data/evidence collection for payers

BARRIER ANALYSIS

Open All Barriers
PATIENT
BARRIERS
Understanding condition/treatment

    Doubts about accuracy of diagnosis

    Frustration with the medical system

Financial/cost issues

    Impact of disease and treatment on work

    Fear of long-term financial burden on family

Psychosocial/emotional issues

    Feeling anxious or depressed by diagnosis

    Feeling lonely/insecure/wondering “why me?”

    Fear of treatment, side effects, and impact on quality of life

Clinician–patient relationship

    Lack of trust in clinician after possible earlier misdiagnoses

    Frustration with clinician for not recognizing condition earlier

Motivation/treatment fatigue

    Experiencing disease symptoms

    Ongoing disease and treatment management

CLINICIAN
BARRIERS
Limited experience

    Limited experience with the specific disease

Financial/cost issues

    Reimbursement

Patient communication/expectation setting

    Difficulty explaining condition and treatment options

    Lack of confidence in patient’s ability to handle treatment

    Limited skills/resources to address psychosocial patient needs and set expectations for treatment

Ongoing disease and treatment monitoring

    Patient returning for follow-up visits

    Data/evidence collection (eg, quality of life, efficacy measures) at and between follow-up patient visits

IMPACT

HCS
SOLUTION

A comprehensive program that engages patients to understand their condition, set expectations, prepare and stay motivated for therapy, and overcome other barriers by working to:

  • Instill confidence in patients’ ability to manage disease symptoms and treatment requirements
  • Connect patients with reimbursement services
  • Help caregivers support patients and take care of their own needs
  • Facilitate communication between patients and clinicians
  • Ensure patients attend scheduled visits
  • Support patients to manage side effects/other complexities of therapy
  • Use provider portal to update clinicians on individual patients between visits